Join us tomorrow for this free webinar
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Walk in Our Shoes: The Experience of Rare Disease Patients
Date: Tomorrow,
April 28, 2022

Time: 2:00-3:00pm ET

The National Organization for Rare Disorders (NORD®) is pleased to continue its collaboration with the Rare Disease Diversity Coalition (RDDC) on a three-part webinar series exploring equity in rare disease healthcare.

Join us tomorrow for the final event in the series, a discussion with rare disease patients from underserved populations about their experiences living with rare disorders and their perceptions of diversity, equity, and inclusion during the healthcare journey.

This webinar is intended for all members of the rare disease community, including patients, caregivers, advocates, researchers, and healthcare providers. Members of the public are also encouraged to join.

SPEAKERS
Brittany Clayborne
President, Brittany Speaks; Rare Disease Patient
 
Linda Sagastume
Student; Rare Disease Patient
MODERATOR
Beverly Francis-Gibson
President and CEO, Together Women Rise
THANK YOU TO OUR SPONSOR
 
 
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NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 330 patient organization members, is committed to the identification, treatment and cure of rare disorders through programs of education, advocacy, research and patient services. rarediseases.org
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National Organization for Rare Disorders, 1900 Crown Colony Drive, Suite 310, Quincy, MA 02169, United States


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